Tuesday, March 19, 2013

" For our present troubles are small and won’t last very long. Yet they produce for us a glory that vastly outweighs them and will last forever! So we don’t look at the troubles we can see now; rather, we fix our gaze on things that cannot be seen. For the things we see now will soon be gone, but the things we cannot see will last forever." 2 Corinthians 4:17-18

I have been meaning to post sooner, but it has been far more crazy then I imagined. I haven't even been able to read a book yet. Gracie is really wanting me near...when I walk away she just says "mommy, mommy, mommy," over and over till I come back. It might get old later but right now I'm enjoying it.   We are out of the hospital and back at the HP House (Hackerrman-Patz House), so I'm taking advantage of nap time and posting from my iPhone. Please forgive typos-lol. Before I update on Gracie I want to let you know I will be posting pictures that may be hard to see. I don't want to offend anyone with them, so I'm giving you fair warning now.

Gracie's surgery went very well. I had prepared myself for putting her under to be one of the worst experiences of my life and our little angel just dove her face right in the mask and started singing. It was hard, but not like I'd expected at all. I think it helped that the anesthesiologist was having her sing with him. I think she thought the mask was a microphone or something. Dr. Standard was very pleased with what they were able to do and said she is going to have a beautiful foot when this was done. It was so great to hear someone that's not family tell me her foot would be beautiful. Recovery was hard as she was still out and when she did come to was so upset they had to give her meds that made her sleep a little longer. The 2nd time coming out of it was much better. We all slept pretty good that night and she just did amazing!
Getting ready for surgery
In recovery, my brave girl
They let me ride in bed to her room, I just needed to be close to her
Awake and hanging out in her room

 

The day after surgery she was shocking us by flipping onto her tummy and rolling all over her bed, so they decided to take her epidural out on day 3 instead of 4 because there was concern she'd pull it out. Day 3 was the hardest. They were going to send us home on day 4, but waited because her pain was not managed. I was up all night with her and we were both overwhelmed. Day 4 was better and she even tried walking a bit. Day 5 we got to go to our home away from home at the HP house and were so happy to be out of the hospital.
Day 2, got out of bed 2x!
Day 2, I'm ready to go!
Day 2, kinda bored
Vroom Vroom, brother's gift came, an ambulance


Day 3, her Maggie Bear from grandma came
Got her toe splint, hot pink
  Day 4, Gracie tried walking again for the first time!!!  She wasn't in a lot of pain, but was very scared and frustrated.

http://youtu.be/TX53A1k2P9M

http://youtu.be/fyfRDmAqY6A

Glad to be home

I get to go home today!

Helping me turn her pins to lengthen/straighten tibia


 
Clinic Day, 2 FH friends

Standing all by herself!
















Gracie's leg after first home cleaning

 Overall Gracie is doing amazingly well. She had her first clinic yesterday and they were pleased with how she looks. Getting back into any kind of schedule has been a challenge as well as getting back her appetite. Today Gracie had her first round of PT, and it was hard. She was frustrated more then anything. She wants to go like she could a week ago and is up in arms at being slowed down. For me, the therapy isn't as hard as watching her cry because she can't get into a toy she got into our first night here, or sit and get stuck because the fixator is so big. It breaks my heart watching her having to re-learn to crawl and walk.  While I know in my head its all necessary, for good reasons, and short lived....it hurts.














I've been told a lot lately how strong I am, and while I agree and appreciate it, (lol-it takes a lot of strength to go thru this), its really my baby girl who is so strong. I look at her and she's what I see when I think of strength. She has a metal cage surgically attached to her leg and drilled into her bones.  It takes away her ability to crawl and walk, and all she wants to do is play. Not wallow or cry or whine but play and giggle and have fun. She is my hero! How can I spend too much time crying about this when she's not???

We have been so blessed by everyone's prayers, the care packages we've received from home and by perfect strangers. A couple days before surgery we received an email from Paladin Sports that the women's running club would be running for Gracie at their May 4th 9k night run at San Tan Regional Park. They are having See Gracie Run printed on their t-shirts, and have started a fundraiser for her. This came all from signing Landry up for tball with them. They happened upon our blog and have been blessing us with their actions and prayers. A friend I've only known on Facebook lives out here in Baltimore and is bringing us dinner tonight. She reached out to her friends for prayer and the offers for visits and meals have followed. Our family has been praying non-stop, as well as our church family and friends. We have felt those prayers!!!  We just want to thank everyone for their love and support. I also want to thank my parents and Nora who have been loving on Landry and spoiling him rotten while we've been away. We miss him so much, but a lot less then we would if he wasn't getting the best care ever!

Right now, I see fibular hemimelia as a roller coaster ride. Some days showing you how strong you are, and others how weak. I do believe though, that it is creating in our family a testimony and strength that will glorify God. It has built, in each one of us things we cannot see, but will last forever. Please continue to pray for quick healing/recovery, no infections, health for our families, rest, and strength.

God Bless!










Friday, March 15, 2013

2 Days Post Surgery

I have snuck away from Gracie's room to quickly write an update.  We are 2 days post surgery and she has done amazing!  Today has been the hardest day and I'm hoping we get a better manage on her pain tomorrow.  Right now, Gracie starts calling for me if I walk into the bathroom, so I really can't update the blog just yet.  I hope to have a post by the end of the weekend.  I just wanted to let you know that we made it, and that she has been a fighter and is amazing me everyday! 

Either my mother or I have been posting updates on the See Gracie Run facebook page.  Until I can get a minute to blog, please keep up with us over there!  Thank you for your prayers!!!!

Saturday, March 9, 2013

One Step at A Time

Normally I start each posting with a bible verse that helps me to keep my focus on God and gain strength from His word.  Today however, I have a message that God gave me, and I feel like it needs no verses, it spoke to me and it's really being pressed on my heart that it will speak to others.

Today is our last day in Arizona.  Tomorrow we start the new "normal" of our lives, and things change.  They may go back to an altered state of what they were, but our whole family will be forever changed by the events of the next month.  As soon as my eyes opened I wanted to puke.  I feel more weighed down and overwhelmed today then I probably have in the last year.  I've felt it coming on, but wasn't quite expecting the physical response that I felt this morning.  That being said, God is soooo good.  Not only did He calm my stomach rather quickly, but He brought to memory a vision He had given me a couple days ago.  I thought at the time I should share it, but I got busy and forgot.  This morning, the pull to share it was so strong that I'm the only one awake right now....while everyone else sleeps in, God got me out of bed to make sure others heard this message as well.  So, I pray that wherever you are in your circumstances today, this touches you and strengthens you like it did me.

In the vision God gave me, I was walking in this dark tunnel.  I was all alone, and the strength it took to lift my leg to take each step was overwhelming.  As I looked down to see why I could barely walk, I noticed a thick tar like substance on the ground.  The tar was making it difficult to move, its purpose was to wear me out so I just stood still.  I stopped for a minute and looked around me.  The tunnel was dark, and I was enclosed or surrounded by it.  I started struggling to walk forward again and all the things that I am juggling right now were running through my mind like a movie.  I do not want to leave for Baltimore tomorrow, I want Gracie healed here, I don't want to spend my 6th anniversary with my husband today, saying good-bye to our son.  I don't want to leave my son for 2 weeks, I don't want to hold my baby girl as they put her to sleep and then hand her off to a surgeon I trust, but who will be cutting her perfectly beautiful leg open, twisting and breaking it, and adding new parts.  I don't want her to have a cage on her leg and mostly, I don't want her to feel a single ounce of pain.  I don't want to think about how I just lost my job, or about how much my whole heart hurts and longs for my grandma.  Even writing these thoughts down has me in tears.  But this was where God wanted me in this vision, because this is where He showed me His mercy.  Suddenly I walk to a point where another tunnel opens above me.  There are stairs there, so I am able to climb out.  As long as I can get my feet out of the tar....as long as I want to work even harder to climb out.  God showed me that it would have been easier to stand there.  In the dark, thinking and mulling over what has happened and is happening so far in this very short start to 2013.  He wanted me to move, to keep focused, and to make progress.  To do that, I had to climb.  So, I took a step, and it was hard.  When I went to take my second step, I thought I was going to fall.  My legs were too weak from walking in the tar.  Instantly God was right underneath me.  Helping me up by pushing my butt up the stairs, one step at a time.  (Sorry, but God and I have a real relationship, and he doesn't always just give me a pep talk...sometimes He just pushes me up by my backside and says get on with it)!  While He was helping me up these steps, I was focused on Him.  On the strength I was getting from Him....I was not focused on all that today or tomorrow or next week brings.

That is where my vision ended, but my feelings of anxiety were suddenly replaced with peace.  Instead of thinking about what was coming, I was thinking about the cards I've gotten in the mail this week from friends giving us encouragement.  I was thinking about the care packages that the women's ministry at our church brought for my babies and me.  I was thinking about my brother who is dog sitting for us when he doesn't really want to, and friends who are pitching in to help out while we're gone.  I was thinking about our parents who have supported us like we could not even imagine during this time, and I was thinking about our church family...who has supported us beyond measure.  There aren't even words for the love, support and strength we have gained from them.  From ALL of these people that God has surrounded us with and placed in our lives.  Suddenly, I wasn't so weighed down anymore. 

This morning, when I woke up and felt sick...and God quickly calmed my stomach....He did it with just a quick flash of that vision.  The part of Him pushing my butt up the stairs.  We are definitely not alone in this.  He is with us, and He has blessed us with a community of loved ones pushing our butts up the stairs.  I still hate what's coming, but I know we can get through it.  I know we aren't alone.

I really feel like this vision was for me...but not just me.  I feel that someone else is supposed to hear these words and gain strength from them....and know that you are not alone in your tunnel.  That God is right underneath you, lifting (or in my case pushing) you out.  I pray that you hear God's voice and feel His presence as you read this.

One last little plug...if you live in Arizona, our church (Life Link Church) is having probably one of the best sermon series I've ever heard and it just started!!!  We will be listening online from Baltimore, but they have a 9am and 11am service if you're interested.  It's all about "Still Standing When It Seems Impossible."  The first sermon is available online at www.lifelinkchurch.com.  It was about learning to be a person that bounces back from life's circumstances, and what it takes to be that person.

Thank you for your prayers, for your love and for your generosity over this last year as we've prepared for what comes tomorrow.  Gracie's surgery is on Wednesday and I will be posting real time updates on her facebook group.  (Search "See Gracie Run" and join).  I will be posting on the blog as well, but more of a summation then immediate prayer needs and updates.  We have never felt more surrounded by friends, family and love and there are no words to express how much it means to us.  Please know that one day, we will pay these blessings forward!